Post by MIRIAM JACOB on Jul 13, 2008 19:03:19 GMT -5
MEET PATRICIA MURRAY AND HER SON, DUSTIN WOOD
PATRICIA MURRAY'S INTERVIEW ON ABC 7 NEWS VIDEO
www.wjla.com/news/stories/0808/542585.html
Please visit Patricia's MySpace Page To Help Raise Awareness for Mast Cell Disease, Ehlers Danlos Syndrome, POTS(Postural Orthostatic Tachycardia Syndrome)and Chronic Fatigue Syndrome.
Patricia and her son Dustin, who is 21 years old, have Ehlers Danlos Syndrome. They have the severe classical variant with vascular issues. They also have a condition called POTS ( Postural Orthostatic Tachycardia syndrome). This was caused by the Ehlers Danlos syndrome.
If you go to Google and type in POTS Place and Ehlers Danlos Syndrome, you will find a lot of information about these. They have had a time with this, but it could always be worse.
Patricia also has Mast Cell Disease (Mastocytosis). Shehas lots of allergies and triggers to many things because of the Mastocytosis. It can cause her to have Anaphylaxis, hives,stomach problems, swelling , itching, breathing problems, blood pressure drops, flushing, I trigger on latex, many foods, medications, heat, cold, stress, pressure to skin, preservatives, dyes, chemicals, detergents, soaps, some plastics .
She uses organic vegetables & fruits. Please help her to spread the word about Mastocytosis & Ehlers Danlos Syndrome. If you tell one person and they tell one person, it will help to raise awareness.
Patricia's son, Dustin is her hero. He is such a positive person. He is a inspiring redneck comedian. He loves to make people laugh. Even though he has lots of medical issues, he manages to have a smile on his face most of the time.
Due to the Ehlers Danlos Syndrome, Dustin had a funnel chest. He had surgery almost 4 years ago to have a bar placed in his chest to hold his chest up. He had the bar taken out in February 2008. Please keep him in your prayers. Dustin also has Chronic Fatigue Syndrome and Partial Complex Seizures.
Patricia and Dustin use laughter as a alternative therapy. It does help with coping, plus they put this in God's hands. You can never go wrong doing that. It also helps to have a positive mental outlook. Going through any type of medical issue is not easy. Patricia works from her room at home.
Patricia is so proud of her Philanthropy work. She has helped many children & families. This brings her so much joy to be able to do this.. She is very blessed. She also redesigns children's costumes and give them to Children's Hospitals or to Charities. She named this "Costumes For A Cause".
Patricia is the Spokesperson for Mastocytosis. She is also on the Board of Directors of the American Latex Allergy Association, and she is writing a Autobiography. She is a former Model & TV and Newspaper Personality.
She published a cookbook Called "Happiness Is Cooking." She gives the proceeds to Charity.
Patricia and Dustin have had health issues their entire lives, so they do not know what it feels like to be well. So they just pretend they are, but with opticals.
You can read more about Patricia and Dustin on their pages.
The above information is published on Patricia's page.
source:http://www. myspace. com/patriciamastoandeds
What truly great hearts!
We are so proud of you, Patricia and Dustin.